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January 21 He's been taught by the best.This is the conversation I just had with my son. (We had a disagreement on the same subject yesterday.)
Cameron- "I don't want to wear this pullup anymore" as he pulls it off. I think YIPPEE!!
Me- "So what do you want to wear?"
Cameron- "Ginch." Ok, so we find him some ginch. They are a tad small but I didn't mention this to him. He hasn't had them on even one minute and he says "I don't want to wear these any more"
Me- "Well I can't have you walking around wearing nothing."
Cameron- "I don't mind." As if he would be doing me a favor?
I'm thinking That's not the point, you can't go around naked. But he has learned from the best.
He's also been taught to flirt. Actually he's known how to flirt since he learned to talk. Picture this. Cameron is still in a stroller, I'm walking him to the day home. There is a lady in front of us, just happens to be a lady that I work with and he knows well and is quite comfortable with.
Me- "There's Yvonne"
Cameron- "She's my girlfriend." Actually by this time there were a few women who he considered to be his girlfriends.
Me- "Oh, is she?"
Cameron- "She's hot."
Maybe you had to be there but it's all in the blunt yet totally innocent matter-of-fact way he says it.
Once again, he learned this from the very best. (But my husband will try to tell you that it was me.)
January 17 Merry (late) Christmas!We got a box today from my dad. It had the kids' Christmas gifts in it and a Star Wars figure for James. And an envelope with my name on it. Not a little envelope but one of those bubble ones. It was adressed and everything as if he had been going to mail it but never got around to it. Well we opened the kids' gifts first (they keep quieter that way) and then I grabbed the envelope. The sound of metal came from within and I knew what it was. When my gran died two years ago (pretty much to the day) I got a whole bunch of things that I really hadn't wanted or not wanted in particular. The one thing I wanted was already spoken for - a latchhook wall hanging of a cuckoo clock. Anyways my dad ended up with her collectable silver spoons. I don't think he was that into them because shortly after he asked if i wanted them. Well of course I did. And he was going to mail them, and he was going to mail them again and again. So inside this envelope were the spoons. some of them were very tarnished so I got some silver wipes today and cleaned them up. But I looked all over town and could not find one spoon rack to proudly display them in. I will find one though and then I can look at them and wonder where she got this one or when she got that one and maybe I will even add to it when I find one that is worthy of being in my gran's spoon collection. January 15 She behaved!!!!Yay!!! I have never been so happy to say that my daughter has behaved. At least at school today she did. After school is another story altogether. But it's a start. Anyways Karen came home from school today and said "I got sent to the PR room." Now, the PR room is where you get sent when you are bad at school. She has been there a few times since the beginning of the school year. Keep in mind that this is something new for her, she has never been sent to the PR (btw it stands for Positive Reflection, you go there to think about what you have done and talk about it with the teacher there who then makes sure you do your work) room before this school year. She has argued with the teacher, burped in people's faces, and kicked a blind kid who had fallen down in the hallway. That's three trips. When you have had your fourth visit your parents are called in to talk to the principal and the teacher. We have been dreading the fourth visit, more than she has I think. Anyways she said "I got sent to the PR room today because I was good."(beaming just a little, I might add) "Excuse me? You were sent to the PR room because you were good? Why?" "Because thats where the candy and certificates were." "Oh." Sure enough, there in her bag is a letter from the PR room saying that since she has not been sent there in the last 21 days that she has attended school that she gets one demerit taken away. Yay for her!!!! Like I said I alwas took it for granted that my kids would behave and never thought I would be this happy just because my kid behaved. But I guess there is a first time for everything. Lets hope that she is on the way back to being my good little girl again. January 14 Movin' right alongThe kids are watching "The Muppet Movie", actually I chose it, it is one of my favorites. Anyways the situation is this... anyone who comes to my blog comes here via my husband's blog I am sure... So they want to take away our financial aid to help pay for Cameron's expenses. His epilepsy meds are expensive and going up as they increased his dose. Plus my coverage from work only covers a percentage of the generic drug now and we won't switch to the generic brand. So they were picking up the difference and reimbursing us for occasional trips to the specialist. And that is all we were asking of them for the most part. It's not like we are trying to milk them for every penny we can. Anyways since his seizures are controlled and it doesn't affect his daily life he doesn't qualify anymore. And if he is not having significant seizures or if there isn't another diagnosis they will close the file. Well as soon as the office was open I called her and explained to her that he has developmental delays that are most likely directly related to the epilepsy, and the epilepsy meds themselves have side effects. And so she wants to know if I have reports from the doctor stating this. Maybe (and if I don't I am sure I could get it). She really didn't sound interested but she said she would try to hold the file open for a while longer so I could get some stuff to her. I definately have the occupational therapist reports and speech therapist reports (they are doctors, aren't they?). In an effort to get as much backing as possible I talked to the school. They were quite obliging (By the sounds of it this happens often, she seemed to know exactly what I wanted) and sent copies of the tests they had done and a note that the Ed. Psych. tests are not back yet and she even wrote a letter. And she sent a copy of the letter that Cam's specialist had wrote to the school confirming his diagnosis and such. But then I talked to the Stollery too. Both his doctor's secretary who said that she would send any reports that were in his file, and his doctor's clinical nurse who said she would go directly to the intake worker who had filed for our coverage in the first place. I am crossing my fingers that they will both get back to us tommorrow. It does appear that the people who actually know my son and are aware of his limitations are all on our side. Hopefully it will be enough. January 08 Awaiting answersPatiently, or at least trying to be patient. Both of my kids have undergone examination by the school recently. Cameron just because he is delayed pretty much all around. There's not a whole lot more that they can do for him, he already has an aide, they just want to reclassify him so that he can keep the aide for longer. Karen on the other hand has her own set of issues. She really is struggling this year and there could be alot of factors there. The school just wants to develop a plan of action from thier part and our part, and her part too I guess that will benefit everybody. That would be her, her teacher and the rest of her class. Anyways, school was back in today so I was anxiously waiting (maybe) hearing something back today. But (there's always a but) we got major snow last night (it was up to my knees in my driveway) and the busses were cancelled. Drat. Maybe tomorrow. But it's hard to be patient when it has to do with my kids. Speak of the devil. Naked boy just walked in yawning. I think it's bedtime. January 04 Angels, stars and luck.I must admit that I believe in angels. For a few reasons. In a few days it will be two years since Cameron had the "status" seizure (which is a seizure that doesn't stop naturally like usual). The timing of that seizure seemed to have been planned by some "higher power". My grandmother had been sick, actually there had been a mixup at the home where she lived and she was given someone else's medication, from which she never did recover really. She slipped into a state of unconciousness (not sure if it was officially a coma or not). And then Cameron ended up in the hospital in Edmonton. I had been anxiously trying to get his specialist to see him, I knew something was not quite right, they were weaning him off of the first medication he had ever been put on and he wasn't dealing with it well. But they wouldn't see him unless it was an emergency. Well they got their emergency. Anyways, she held on until he was released, I got to visit her, as much as it could be called visiting- I sat on her bedside told her I loved her and squeezed her hand. As I started to cry my dad said it was time to go and reassured me that she knew I was there. A few days after we returned home I got the news that she had passed away. She had actually woken up, and had been talking to my dad and everything. Then she was just gone. But at least I got to see her one last time. And all because Cameron had that horrible seizure. Everything happens for a reason, I am sure of that. Anyways, a while later my cousin got in touch with the star registries and had a star named after her. I know there are people who insist this is a crock but I find comfort in the thought that she is up there watching over me from a star. A few years ago I went to see a psycic medium. She said alot of things that I have yet to validate. Maybe I am scared because I just want to believe. Anyways she said that my cousin watches over my children. And boy do they ever need it. Let me list the lives Cameron has used up (out of the 9 he started with only 5 years ago)- James found him turning blue in the hallway, Falling down a flight of stairs only to have his head land on a shoe that hadn't been there minutes before instead of on the slate landing, seizure #1, Karen driving the car (that took up two because he gave one to her too), him driving the car, and then status #1 (not that there weren't dozens of seizures in between but none of them were really as bad as the first and the last (we can't even count that one a few months ago), maybe you can even count the dog bite to the face because if that dog had wanted to he could have tore his face right off. So I find comfort there too, that somebody is keeping my kids safe, that is more than just blind luck. And then there are the little things. Like my mom, she got hit by a car a few years back while riding her bike and came away with only a pin in her hip, I thought she would have that limp forever but it went away. A few years after that she developed cancer but she is one tough bird and today is still cancer free. Like that day Cam and I were visiting my dad and we were hit from behind by one of those BIG delivery trucks. The car was thrown half way down the block. It haunts me to this day, I close my eyes and see what would have happened if the kids hadn't been buckled in. Because people do it every day. But I will never take that chance. I know this is alot of mindless drivel but my kids are gone and my husband is gone and this is what I do when I am left to entertain myself. Mindless drivel. Where was I going with this? I don't know. |
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